Premise of your argument should inflame us all when viewed in context of many of major medical center sponsored support groups. One must not forget hard science argued by likes of Wolinsky et al has quickly brought us to the point we're at today. Those brethren who argue it's too much information and/or too hard to follow, while your voice is important, halfhearted commitment to change the minds of insurance companies and government alike through our care providers serves no one, least yourself. Find solace in your writing exercises offered by the very same "sponsored" groups.
Thanks, Steven. I heard from one if the most famous scientists in this field today. He said he learned long ago what PCF ks all about. He said their intent is good but they have tunnel vision and don't see value in sponsoring research on AS. Donor's beware.
Thanks, Steve, for sharing your views. We have started our own AS-only groups. Why? Because patients like us are on the bottom rung of priorities. We innocently donate to PCF "to research PCa." That's why I called it the (Advanced) Prostate Cancer Foundation. Truth in advertising. I urge you all to chase Dr. Ryan at cryan@pcf.org and ask: How much of his research budget goes for AS and localized PCa? And why should patients on AS donate to PCF?
> how can we identify only those particular cancers safely and reliably before they have metastasized to the bone marrow?
> what treatment can safely, irrefutably and reproducibly extend life?
we haven't got the answers to these most fundamental questions because our studies are not founded on sound scientific principles - according to Ioannidis who determined that most published research findings were false.
Premise of your argument should inflame us all when viewed in context of many of major medical center sponsored support groups. One must not forget hard science argued by likes of Wolinsky et al has quickly brought us to the point we're at today. Those brethren who argue it's too much information and/or too hard to follow, while your voice is important, halfhearted commitment to change the minds of insurance companies and government alike through our care providers serves no one, least yourself. Find solace in your writing exercises offered by the very same "sponsored" groups.
Thanks, Steven. I heard from one if the most famous scientists in this field today. He said he learned long ago what PCF ks all about. He said their intent is good but they have tunnel vision and don't see value in sponsoring research on AS. Donor's beware.
Bravo Howard! You are the ultimate warrior for AS. Clearly if PCF had any interest in funding AS you would have gotten a different answer.
AS needs research and funding from other sources. Perhaps AS even needs its own organization.
Thanks, Steve, for sharing your views. We have started our own AS-only groups. Why? Because patients like us are on the bottom rung of priorities. We innocently donate to PCF "to research PCa." That's why I called it the (Advanced) Prostate Cancer Foundation. Truth in advertising. I urge you all to chase Dr. Ryan at cryan@pcf.org and ask: How much of his research budget goes for AS and localized PCa? And why should patients on AS donate to PCF?
I think the bigger questions here are:
> which prostate cancers are potentially lethal?
> how can we identify only those particular cancers safely and reliably before they have metastasized to the bone marrow?
> what treatment can safely, irrefutably and reproducibly extend life?
we haven't got the answers to these most fundamental questions because our studies are not founded on sound scientific principles - according to Ioannidis who determined that most published research findings were false.
https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.0020124